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Managing Food at Celebrations

Overview:

As a family, you will have social events to attend or host such as birthday parties and festive celebrations.

Here are some suggestions that you may find useful:

• Before the event, speak to the family of the child whose celebration it is and explain that PKU is managed with a strict low protein diet. Reassure them that this is not something they need to be concerned about, although following the dietary principles is important. If they are keen to know more, share the ‘Introduction to PKU’ information booklet with them.

• It might help to mention that if a child with PKU accidentally eats or drinks anything that they are not allowed, there won’t be any noticeable immediate effects. This is not a food allergy nor a medical emergency. However, it is important you are informed and steps are in place to minimise this in the future.

 

These occasions often involve food and there is likely to be food available that your child cannot have. With a little pre-planning, there is no reason why they can’t enjoy these occasions and have as much fun as everyone else.

• If the birthday party is in a friend’s home, ask the friend’s parents/guardians what foods they

are making and suggest to them that you will provide low protein alternatives.

• If the birthday party is not in a friend’s home, contact the party venue in advance and explain that your child has a special diet and you will be providing low protein food for them to eat. Again, find out what they intend to provide for the children without PKU, so you can make suitable low protein alternatives.

• You can use different coloured plates or mats to identify low protein foods to help prevent mix-ups. For example, green plates or mats to indicate permitted foods and red for foods to avoid.

• Make sure the parents know that whilst children at the party without PKU should leave the special low-protein foods for your child, they will not come to any harm if they eat them.

• If any party games are being played, ask if the prizes are food-related. If the prizes are protein-containing foods, provide some permitted food prizes instead such as sweets or non-food related prizes such as stickers, colouring books or small toys.

• Ask if there will be a party bag and what may be in it, again provide suitable low protein alternatives to ensure your child does not miss out on any party treats!

• Provide a piece of low protein cake (iced if possible) to be eaten at the party and/or added to the party bag so your child doesn’t feel left out.

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